20.02.19 – Keep Pushing On

I’ve asked to increase my hours again by an extra hour a day. I’m managing to keep up with help of short breaks when I can. I still rely on a lot of sleep. I got home after an early shift on Monday, fell asleep on the sofa for an hour and still managed to get a 14 hr sleep that night! I woke up late for work the next day but I still managed to get there on time! Just about!

I went to the QE for 2 hospital appointments a couple of weeks ago. This was the first one since I was admitted in December. I saw the medical and surgical team. They were happy with my progress and don’t think I need any intervention in regards to the bile ducts. Barium swallow, HIDA and ultrasound scan showed nothing sinister which was great news! Since that appointment, I’ve heard nothing until today when they left a message on my answer phone. They want me back in next week to have bloods taken because they are yet again, slightly off. Can’t my bloods just ever be normal!?

There was one thing I mentioned to the medical team, and that was about the pain I’m still in. They were happy for me to keep taking my pain relief but if it doesn’t improve, I’ll be referred to the pain team. I do feel that it’s slowly improving, but I struggle at work without it. I’m making sure I still rest when I need to. I’ve got lots of annual leave booked off in March, so I’m looking forward to relaxing.

A few weeks ago, I spent a weekend away for my friends 30th birthday. We flew to Dublin from Birmingham. We did so much, including going to the Leprechaun Museum, as you do! 😂 It was the break I needed! More holidays to come! 😁

Happy birthday Alex 😘

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7 thoughts on “20.02.19 – Keep Pushing On

  1. You would make a Leprechaun swoon ! Good stuff. Sorry to hear you still have pain. I was lucky i guess as the only pain i had was from all the poking and medical procedures. Still healing i guess. My bloodwork was all over until my Dr switched my rejection meds from Tac to Sirolimus. Steady going after that. Tac was hard on my kidneys as well, as my kidney numbers were deteriorating using that. After they switched me at around 7-8 months i leveled out and been steady ever since. That was back in ’15. I guess it takes some tweaking to get your fine body running smoothly once again. Patience Olivia. See you on the next Britain’s Got Talent !

    Liked by 1 person

    1. Haha. Thanks.
      Well I have been changed to Advogaf (Tac slow release). Never heard of Sirolimus; I’ll have a google. I didn’t think it would take so long to stabilise everything. I have another friend who was transplanted a week after. She also has deranged bloods every so often. I’m booked in for bloods and an ultrasound next wed.
      Did you feel the effects of your kidneys? That just sounds painful in itself.

      Like

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