15.03.19 – Liver-versary

Ahh! A moment of euphoria seeing myself on TV! I was on ‘The One Show’ last week talking about my experience with organ donation, how great I feel and honoured to have been given a second chance of life. It was also my first liver transplant anniversary last weekend, so I celebrated it as a joint birthday event by having dinner and drinks with friends and family. A few days later, I find myself back in hospital with severe abdominal pain and fever. 🤦🏻‍♀️.

Wednesday morning, (first day of annual leave) I woke up at 09:11 in agony. I thought it was just the usual stomach pain I get daily. I took some pain relief which didn’t help, so took another tablet. Whilst shouting and swearing in agony around my flat, I managed to get some breakfast together, but struggled to stomach it. I just lay in bed in agony, feeling feverish and not knowing what to do with myself. I’ve never had to call an ambulance before, but there was no way I’d be able to get to the hospital myself. The ambulance crew arrived, checked my vital signs and confirmed that I had an infection. So back to the hospital I went, in through A&E and after a few hours, back up to the liver ward.

I had been to the hospital on Monday to visit a friend and to speak in front of professionals, friends and liver patients for the launch of BLYS (Birmingham Liver Youth Support). Myself, patients and professionals got together to launch a group to support young patients with liver disease between the ages of 16-25

We aim to support younger patients who need advice and support with Liver Disease. We all felt that we had no one else to talk to who had experienced life with liver disease. During clinics, there were rarely any younger patients, so we all felt out of place without anyone else with similar experiences. We have an Instagram page if anyone is interested in finding out what we are about.

During this hospital admission, they think that it’s the bile duct playing up again, just what they thought was the case in December. They have done all tests they can think of, so have to repeat them to find evidence of the bile reflux they believe is the problem. 🤷🏻‍♀️. I’m on IV antibiotics, feeling tired but ok, and able to go back home between drug rounds.

I’m keeping my fingers crossed that I’ll be home in time for my birthday on Tues. I’ve already spent a few birthdays in hospital, so hoping I’ll be out for this one. 🤞🏼😫

Click here to sign up to organ donation! It is equally important to discuss your wishes with your family, so that they support your decision. Thank you!

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5 thoughts on “15.03.19 – Liver-versary

  1. Hi Olivia
    Sorry about your rough patch you are navigating . You are a tough and strong woman so I am sure you will be up and about celebrating your birthday . Congratulations on your liverversary . You are now 1 yr old in reborn years .
    Good for you for going on the TV and sharing your story . Proud of you . So as it is written in the ancient Egyptian scrolls “ Get well soon, So let it be written. So let it be done“ .
    Cheers and God Bless
    Take care Olivia
    Bob
    Ps
    If you don’t blog on your birthday ,here’s an early salutation.
    Happy Birthday beautiful !

    Liked by 1 person

  2. Hi there, I’ve just found your amazing blog and had to reply. I am so sorry you’re unwell again and I hope you’re feeling a lot better soon and home before your birthday. I am 30 years old kasai only from Australia (and I am also a nurse!). I find it so frustrating and upsetting that there’s little to no information out there for adult survivors. I’ve been unwell recently with cholangitis and hospitalised a few times but mostly well. I guess the fear of the unknown future is almost worse sometimes!

    Like

    1. Hi Michelle. I’m so sorry for the late reply. I’ve been so busy! I’m feeling much better now thank you. It’s good to be back at work.
      It’s amazing that I met another girl in hospital who is 30 and is on the transplant list too. She’s also had a kasai.
      How many times have you had Cholangitis? Have you had a transplant?
      Thanks for your message!!!
      Olivia

      Like

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