Yet another birthday spent in hospital. Luckily I was well enough to go home in the afternoon to spend time with friends. Instead of hospital dinner, which isn’t as bad as some make it out to be, we ordered pizza 🍕. I went home on Thursday 20th so I was able to celebrate properly at the weekend. Im glad I was admitted because they have been able to come up with a short term plan to avoid getting an infection and advise me on the right pain relief. Ive told them that I’ve been struggling to get through my day without it, so I was referred to the pain team with an idea on what could be causing it. It all happens much quicker as an inpatient so I’ve managed to get a lot more sorted. I’m positive that I’ll be out of hospital for much longer this time. I was discharged home with long term antibiotics to avoid getting another infection. Unfortunately they can’t find the cause. I have had numerous scans done (HIDA, Barium Swallow, Ultrasound, MRCP, Chest X-ray, CT with and without contrast) to look for any abnormalities.
I’m now taking 3 lots of antibiotics (Ciprofloxacin, Co – Trimoxazole and Cefuroxime) to rotate over the next 6 weeks. I’ll then be reviewed again in clinic to see how I’m getting on. I can’t just be given any antibiotics as some aren’t safe to take post transplant, e.g Rifampicin.
Thank you to friends and family for the support and taking me out for my 28th. 😘
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